Tribute Page - In Loving Memory
About Cystic Fibrosis
Cystic Fibrosis is a progressive genetic disease that affects the lungs, pancreas, and other organs. The Cystic Fibrosis Foundation was started by a group of parents of children with CF in 1955. Thanks to the CF Foundation there is now medicine that helps to correct the genetic mutation that causes CF. Although there has been significant progress in treating CF, there is still no cure and too many lives are cut far too short. Help us join the fight and make CF stand for Cure Found!
On August 5th, 2022 we welcomed our precious baby boy into the world. During our first pediatricians appointment, our doctor notified us that his newborn screen from the hospital had been "flagged" but 90% sure that it was a false positive. A few days later, Caroline received a phone call from our pediatric pulmonologist, delivering the life-changing words that Payne did in fact have Cystic Fibrosis. All we could think was that this had been some mistake, they had the wrong baby, not our sweet Payne. We both had no known CF history in our family. As scary & shocking as everything was, the next day we were welcomed with open arms by our Upstate CF Center, led by Dr. Steven Snodgrass. They blocked off their entire afternoon to meet with us & help create our new plan for Payne's life living with Cystic Fibrosis. After the first appointment, our worries were exchanged for hope, as we learned about the incredible medicine that was recently approved to support those living with CF. We are so very thankful for the blessing that Payne was born during this time of life-changing medicine & all the Cystic Fibrosis Foundation has done to equip him for this journey. At 7 days old, Payne learned to take medicine with his each feeding & will continue to take medicine for the rest of his life. We are so grateful for Dr. Snodgrass & his team in Greenville, SC as they have already lovingly & meticulously cared for Payne & will continue to do so. This is only the beginning of his story, but with these new developments, we & his doctors are hopeful that Payne will live a long, healthy, normal life. We know that God makes no mistakes & part of His plan for Payne is to live with Cystic Fibrosis for us to parent him through it.
- Caroline & Zach Washburn