Thanks for checking out our page!
As many of you know our headband wearing, sports dominating, and #1 hype person for all around her, Connor "CoJo" Lewis has Cystic Fibrosis (CF). Connor's brother, Richard, also has CF and this disease has been a part of their lives since Day 1. In short, CF is a genetic condition that affects a protein in the body, this faulty protein affects the body's cells, tissues, and the glands that make mucus and sweat.
Connor and friends used to do a CF ride organized by the CF Foundation every summer called CF Cycle for Life which raised funds and awareness for Cystic Fibrosis. The 65 mile ride stopped once Covid hit and they have decided to not restart the event in Minnesota. It’s since been something Connor has said she would love to do again, so we are going to make that happen this fall.
If you are interested in being kept in the loop and either riding or volunteering to help day of please fill out this -> form <-
TENTATIVE ROUTE INFORMATION
- Entire ride: 65 miles - Start and end in St. Paul
- Partial ride: 15 miles - Join full group in White Bear Lake and ride to St Paul
Rest Stops (with food/drink/bathroom):
- Afton (22 miles)
- Stillwater (34 miles)
- White Bear Lake (~50 miles)
Why 65 Miles? The number 65 is special in the CF community because kids who struggle to say Cystic Fibrosis, simply say “Sixty-Five Roses”.
Fundraiser: There is no registration fee but donations are welcome and will continue to help the CF Foundation further research for medications to help individuals and eventually finding a cure.
A bit more about our Fundraising Efforts:
We choose to do our fundraising through the CF Foundation because, drugs (such as Tricafta working at the cellular level) and symptom improving devices (helping with mucus break up and breathing) are huge for improving and maintaining quality of life for anyone with CF but we can't stop there. The Cystic Fibrosis Foundation continues to work every day to find a cure for Cystic Fibrosis.
Contributions to this fundraising page go to the Annual Fund which provides important, unrestricted resources that help develop new treatments and pursue every opportunity for promising research that can lead to a cure.