Many people think that CF is a lung disease that causes you to cough a lot and restricts your activities in life. While some of that is true, CF is an illness that impacts multiple organs and systems in the body. Most people with Cystic Fibrosis experience severe gastrointestinal and digestive issues requiring several medications to help their body do the work it can't do on its own. Many CF patients also experience severe lung infections often resulting in hospital stays and extended periods of medicated treatment.
Sydney has two CF mutations - one of which is the most common, most researched and well funded; her second mutation, however, is extremely rare (she is one of 5 people in a registry of 90k+ CF patients). While Sydney has been extremely fortunate to not have any complications in her first three months of life, it is vital that we stay ahead of her treatment and work to better understand her rare mutation.
One of the ways for us to do this is through fundraising to support the Cystic Fibrosis Foundation - the key organization in helping develop new drugs to fight both the cause and symptoms of CF. Contributions to the Annual Fund provide vital, unrestricted resources that help develop new treatments and pursue every opportunity for promising research that can lead to a cure. Please consider making a gift today. Your support will help make a difference in Sydney's life and for all those with CF and their families. We are committed to helping find a cure for Cystic Fibrosis. We cannot thank you enough!
**this is an annual fundraiser for the CF Foundation; donations do not go to us or toward any of Sydney's medical expenses**