On May 25, at just 19 days old, Sydney was diagnosed with Cystic Fibrosis. Stephen and I were told that our sweet little baby girl has a life threatening illness that will change the course of her life (and ours) forever. While initially devastated and heartbroken for our child, we have come to understand that Sydney and we are on this journey for a reason and we are doing everything in our power to give her the awesome, fulfilling and love-filled life that she deserves.
Many people think that CF is a lung disease that causes you to cough a lot and restricts your activities in life. While some of that is true, CF is a disease that impacts multiple organs and systems in the body. Most people with CF experience severe gastrointestinal and digestive issues at some point in their life, in addition to the more well known pulmonary impacts. Many CF patients experience severe lung infections, go on to develop diabetes,
We are committed to helping find a cure for cystic fibrosis and are raising funds to support the Cystic Fibrosis Foundation’s Annual Fund. Contributions to the Annual Fund provide important, unrestricted resources that help develop new treatments and pursue every opportunity for promising research that can lead to a cure. Please consider making a gift today. Your support will help make a difference in Sydney's life and for all those with CF and their families. We cannot thank you enough!