I've started a blog so that anyone can follow us on trail! There will be new posts once or twice a week, with updates on our progress and lots of pictures! You can subscribe to get notified of new posts, or just view the site when you want. The link is https://thelongtrailtoacure.wordpress.com
Backpacking with medications (particularly refrigerated ones) can be difficult, and I am fortunate to have parents who have "volunteered" to help restock medications along the way. We are aiming to hike the 271 miles in about 3-4 weeks total, depending how the mileage feels and how the weather treats us. I hope to not only raise money for the CFF but also to raise awareness for others with CF who are trying to explore the outdoors with the burden of medications.
I originally meant to do this hike just as a personal challenge (as well as for fun), but in my struggle to research about how to backpack with refrigerated medications (and the lack of information about it), I decided to turn it into a fundraising opportunity and a way to spread the word for others with CF trying to get out there.
The CFF has raised money over my lifetime that has helped improve the life expectancy from around 32 when I was born to about 46 today, thanks to new medications and therapies. Many people with CF are not as fortunate as me, and hiking for a month would be nearly impossible. Hopefully this hike will help fund research that may make it possible for more people with CF to get out there.
Thank you to those who support us along the trail, to Ryan for hiking with me, and those who donate. Please feel free to share this page or reach out with any questions you may have, hiking related or not!
We’ll be posting on a blog if you want to follow our progress on trail! https://thelongtrailtoacure.wordpress.com/
Thank you to those who have donated so far! After less than 2 days, we've already reached the original goal of $10,000! I still have around a month until I start the hike, so I have raised the goal to $15,000. Thank you so much for your support and your kind notes. It means a lot to me to see so many people supporting the cause.