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Join us in supporting the Cystic Fibrosis Foundation in honor of Marie!
Michele Taigounov
Michele Taigounov
Dear friends and family,
For the TWELTH year in a row, we are kicking off Giving Tuesday and the holiday season with our Cystic Fibrosis (CF) Foundation Fundraising letter!! Please join us once again in supporting the CF Foundation in honor of our daughter, Marie, who was born with this life-threatening disease. The CF Foundation is the reason our daughter and thousands like her have hope for longer, healthier lives.
Cystic Fibrosis is a genetic disease that affects the lungs and digestive system. Twelve years ago, during the holiday season, I found out Marie would be born with this condition when I was 18 weeks pregnant. Since then, we have watched the progress in care and medicine advance right before our eyes - entirely made possible by the CF Foundation.
We are happy to report that Marie is doing great! She still dances competitively 5+ days / week, plays on two soccer teams in Fall and Spring, surfs all summer long, and so much more! She is such a fun kid who loves time with her family and friends.
Her current good health would not be possible without the CF Foundation's progress. Just to maintain her health, Marie has an extensive care routine daily. She does at least three nebulizers and chest physical therapy 2-3 times per day, every day. She takes 20+ oral pills daily, including every time she eats. She visits a team of five doctors and specialists every quarter, where she does bloodwork, chest x rays, lung function tests, and more. All of this care and medication was developed by the CF Foundation. When Marie was 6 years old, she started a breakthrough medication that has drastically changed life expectancy for people with CF. We have literally watched the progress advance before us since our first fundraiser 12 years ago. Every dollar donated to the CF Foundation makes a real difference. This incredible organization is the reason thousands of people with CF and their families have hope for longer, healthier lives, but there is still no cure and still so much work to be done.
As we kick off the season of giving, please consider supporting the Cystic Fibrosis Foundation with us!
Happy Holidays with love,
Michele and Fam
For the TWELTH year in a row, we are kicking off Giving Tuesday and the holiday season with our Cystic Fibrosis (CF) Foundation Fundraising letter!! Please join us once again in supporting the CF Foundation in honor of our daughter, Marie, who was born with this life-threatening disease. The CF Foundation is the reason our daughter and thousands like her have hope for longer, healthier lives.
Cystic Fibrosis is a genetic disease that affects the lungs and digestive system. Twelve years ago, during the holiday season, I found out Marie would be born with this condition when I was 18 weeks pregnant. Since then, we have watched the progress in care and medicine advance right before our eyes - entirely made possible by the CF Foundation.
We are happy to report that Marie is doing great! She still dances competitively 5+ days / week, plays on two soccer teams in Fall and Spring, surfs all summer long, and so much more! She is such a fun kid who loves time with her family and friends.
Her current good health would not be possible without the CF Foundation's progress. Just to maintain her health, Marie has an extensive care routine daily. She does at least three nebulizers and chest physical therapy 2-3 times per day, every day. She takes 20+ oral pills daily, including every time she eats. She visits a team of five doctors and specialists every quarter, where she does bloodwork, chest x rays, lung function tests, and more. All of this care and medication was developed by the CF Foundation. When Marie was 6 years old, she started a breakthrough medication that has drastically changed life expectancy for people with CF. We have literally watched the progress advance before us since our first fundraiser 12 years ago. Every dollar donated to the CF Foundation makes a real difference. This incredible organization is the reason thousands of people with CF and their families have hope for longer, healthier lives, but there is still no cure and still so much work to be done.
As we kick off the season of giving, please consider supporting the Cystic Fibrosis Foundation with us!
Happy Holidays with love,
Michele and Fam
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