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Support the Cystic Fibrosis Foundation for Giving Tuesday with the Taigounov Family!
Michele Taigounov
Michele Taigounov
Every year on Giving Tuesday, we kick off our campaign to fundraise for the Cystic Fibrosis Foundation in honor of our one and only, Marie! Our daughter, Marie, was born with Cystic Fibrosis, a life-threatening genetic disease that affects the lungs and digestive system.
It was exactly ten years ago that I found out while 18 weeks pregnant with Marie that she would be born with the genetic disease, Cystic Fibrosis (CF). I had never heard of the disease, had no idea that both my husband and I were carriers, and my life was completely turned over. At the time, her life expectancy was predicted to be 37. Ten years later, the advances in medicine and care for people with CF have been absolutely ground-breaking and life expectancy has increased by more than 20 years for some people. This is partially due to A life-changing medicine developed by the CF Foundation, called Trikafta. It was approved for Marie's age group four years ago and she has been taking it ever since. Every single dollar we have raised for this organization since we started in 2014 has translated to breakthroughs like this that give Marie and thousands of people like her hope for longer and healthier lives. But the work is not done as many people with CF still have serious challenges and there is no cure.
Though you might not realize it, Marie has to work hard every single day to stay healthy. She takes over 20 pills per day, including every time she eats. She does chest physical therapy that includes wearing a percussive vest while inhaling at least 3 medicines through a nebulizer for 20 to 30 minutes as soon as she wakes up and before she goes to bed every single day, sometimes even three to four times per day. Marie also sees a team of five specialists quarterly along with other care routines annually that includes x rays, blood work, eye exams, lung function tests, abdomen ultrasounds, and more. Nearly all the medicine she takes, and all of her care routine was developed by the Cystic Fibrosis Foundation so that she can have a normal childhood and hope for a bright future. Thanks to the Cystic Fibrosis Foundation's advancement, Marie is doing well and fills her time with dance, soccer, surf, friends, family, and so many wonderful things. Our family works hard every day to ensure she can continue to feel great well into the future.
Please consider making a donation to the Cystic Fibrosis Foundation so that we can continue adding quality and years to the lives of people like Marie with Cystic Fibrosis.
Thank you from the bottom of our hearts and Happy Holidays!!
Love,
Michele and the Taigounov Family
P.s.
It was exactly ten years ago that I found out while 18 weeks pregnant with Marie that she would be born with the genetic disease, Cystic Fibrosis (CF). I had never heard of the disease, had no idea that both my husband and I were carriers, and my life was completely turned over. At the time, her life expectancy was predicted to be 37. Ten years later, the advances in medicine and care for people with CF have been absolutely ground-breaking and life expectancy has increased by more than 20 years for some people. This is partially due to A life-changing medicine developed by the CF Foundation, called Trikafta. It was approved for Marie's age group four years ago and she has been taking it ever since. Every single dollar we have raised for this organization since we started in 2014 has translated to breakthroughs like this that give Marie and thousands of people like her hope for longer and healthier lives. But the work is not done as many people with CF still have serious challenges and there is no cure.
Though you might not realize it, Marie has to work hard every single day to stay healthy. She takes over 20 pills per day, including every time she eats. She does chest physical therapy that includes wearing a percussive vest while inhaling at least 3 medicines through a nebulizer for 20 to 30 minutes as soon as she wakes up and before she goes to bed every single day, sometimes even three to four times per day. Marie also sees a team of five specialists quarterly along with other care routines annually that includes x rays, blood work, eye exams, lung function tests, abdomen ultrasounds, and more. Nearly all the medicine she takes, and all of her care routine was developed by the Cystic Fibrosis Foundation so that she can have a normal childhood and hope for a bright future. Thanks to the Cystic Fibrosis Foundation's advancement, Marie is doing well and fills her time with dance, soccer, surf, friends, family, and so many wonderful things. Our family works hard every day to ensure she can continue to feel great well into the future.
Please consider making a donation to the Cystic Fibrosis Foundation so that we can continue adding quality and years to the lives of people like Marie with Cystic Fibrosis.
Thank you from the bottom of our hearts and Happy Holidays!!
Love,
Michele and the Taigounov Family
P.s.
Here's a fun video we made a few years ago to give you a peek into Marie's life with CF!
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