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I updated the banner photo because I would like to dedicate my fundraising efforts this year to the memory of my friend Brian O'Sullivan, second from the left. As the director of the pediatric CF Center at Dartmouth, Brian was a fabulous doc to so many CF families -- and he is one of the many physicians who have helped Rose thrive with CF. But it was also from Brian that I learned how to be feisty in talking back to Big Pharma. And, like me, he was a fan of Dorothy Hansine Andersen, the woman who discovered CF in 1938 and does not get enough credit for her earth-shattering achievement. This picture was taken on the nigh before Brian died; he passed away at the Mount Washington hotel among friend with whom he shared a commitment to this great quest to overcome CF. (Also in this picture: Chris Ellms, manager of the Bretton Woods Ski Resort, and my spouse Hilary -- both also good friends of the CF Foundation.)
Welcome to Don's Page
Don Kreis
Don Kreis
Twenty-four years ago, cystic fibrosis snuck up behind me, tapped me on the shoulder, and did not ask me but told me: Turn around and follow. So I did! Now my baby girl who was diagnosed with CF in the spring of 2002 is a thriving and successful grown-up who is about to start law school. The median predicted survival age, in just those years, has increased from 31 to 65 -- astonishing success that is almost entirely attributable to the good work of the Cystic Fibrosis Foundation. But the work is not done! We have not yet cured cystic fibrosis and threats to my daughter's health lurk behind every tree. So, I invite you to join me in continuing to support what is rightly called, in many quarters. "the greatest story in medicine."
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The photograph in the banner shows Rose's stepmother Hilary, Rose, her boyfriend Matthew, and me at the Moby-Dick Marathon, held every January at the New Bedford Whaling Museum. Rose, Matthew, and I were all readers this year. Consider that when Herman Melville was around, cystic fibrosis had not yet been identified -- it was just a mysterious reason why some babies and little kids died.
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