My godson Will was born with cystic fibrosis in April of 1997. His parents were told that he only had a 50% chance to live to age 18. I am SO Happy to report that Will turns 23 years old in April 2020. Last May 2019, Will graduated with his Bachelor's Degree from University of Vermont. He is currently looking to pursue a Masters Degree. As his 'godmother' I could not be more proud!!
October 2019 marked an amazing milestone in cystic fibrosis treatment - Trikafta! This medication is available to help 90% of people with CF. Will has a nonsense gene, which means he falls in the 10% of people with CF who are not eligible to take this medication.
Let's keep fighting, fundraising, and researching Until Its Done! Make CF stand for Cure Found!
Please consider making a gift today. Your support will help make a difference for Will, me, our family and all those with CF and their families.
Thank you! Much Love, Leah