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Deborah Horwitz & Paul Nierman

Deborah Horwitz & Paul Nierman

Our grandson is 10 and started 5th grade full-time at school this fall. His favorite subject is math. He keeps up with his friends on the computer, rides his bike and hangs out with them outdoors and in school, always wearing a mask.  He spends a lot of time with his 5-year-old sister who worships him. Most of his activities are remote (e.g. music lessons) but summer 2021 he played in two Little League and two soccer teams (and was on the All-Star Little League team), then played fall soccer and Little League Majors -- and he still has lots of energy for shooting in his driveway basketball hoop.  He reads lots of books, loves making elaborate Lego creations, piecing together complex jigsaw puzzles, and stumping us with his jokes and riddles.

He remains "healthy" because his parents are 150% diligent, making sure he continues to take over 25 treatments each day (multiple enzymes, antibiotics, inhaled nebulizer treatments, breathing treatments & airway clearance therapies, basic nutrition through a port in his tummy). But we still worry. What if this year, he catches a cold he can't shake and his lung function drops and doesn't recover? What if this is the year where he catches a more serious infection and has to spend weeks in the hospital and months in extra treatment? There is progress in research, but still no treatment or cure for his rare mutation. Please donate to our campaign to speed life-saving breakthroughs and a cure for CF. We are committed to giving until it's done.

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$8,907.50
raised of $12,000 goal
 

Recent Donations

1. LSLaurel & Stan Schwartz
$25.00
2. DHDeborah Horwitz
In memory of Martin Dresser. May his name be for a blessing.
$25.00
3. SJSherrill Joseph
$100.00
4. EFEllen Friedman
$50.00
5. LDLori Drozd
$100.00
6. PMPat Libby Michael Eichler